Finding Community in Care Centers

A trial conducted by researchers at Penn Nursing will explore the potential of social virtual reality for those experiencing loneliness

“You’re always thinking about looking in the literature and trying to determine what patients are saying. What would be helpful? What’s burdensome in their lives?” says Lea Ann Matura, Associate Professor in the Department of Biobehavioral Health Sciences at the School of Nursing.

When Matura looked in the literature, what she saw was loneliness.

A Change of Scene

Catalyzed by her reading and equipped with a $50,000 grant from the Hillman Foundation, Matura and her team are now pursuing a trial that explores how social virtual reality (VR) might lessen loneliness among people being treated with hemodialysis.

For those unfamiliar with dialysis centers, Matura describes their layout as similar to that of a nail salon, with a central open space lined by alternating reclining chairs and dialysis machines. But the experience is anything but relaxing: treatments typically occur on-site three times a week, and each session lasts up to four hours. “Hemodialysis treatment often leaves patients fatigued, with only a day or two of recovery between each session,” notes Matura.

A modern and spacious dialysis center with multiple treatment stations, featuring teal-blue reclining dialysis chairs equipped with dialysis machines and small swing-arm TVs for patient entertainment.
Nearly 557,500 people in the United States are undergoing dialysis for end-stage kidney disease, according to the United States Renal Data System 2020 Annual Data Report.

While some patients do form relationships with nurses and others on the same treatment schedule, Matura points out that for some, hemodialysis can compound feelings of isolation brought on by accompanying changes in circumstance—leaving the workplace, for example, or letting go of what had been a daily social routine.

The consequences of missing even one dialysis session are high, most likely leading the patient to the nearest emergency room.

Informational graphic titled 'SOCIAL CONNECTION FACT CARD' with a lavender header and footer. It states that living in isolation reduces survival chances and increases the risk of premature mortality by 29%, citing 'Holt-Lunstad et al., 2015'.
Informational graphic titled 'SOCIAL CONNECTION FACT CARD' with an olive green header and footer. It states that chronic loneliness and social isolation among older adults can increase the risk of developing dementia by approximately 50%, citing 'Lazzari & Rabottini, 2021'.
Informational graphic titled 'SOCIAL CONNECTION FACT CARD' with a burnt orange header and footer. It states that social isolation, or even the perception of isolation, can increase body inflammation to the same degree as physical inactivity, citing 'Yang et al., 2016'.
Informational graphic titled 'SOCIAL CONNECTION FACT CARD' with a blue header and footer. It states that social support from friends and family is associated with improved management of hypertension and diabetes, citing studies by Magrin et al., 2017; Shahin et al., 2021; Pan et al., 2021; and Song et al., 2017.

More Than a Spoonful of Sugar

To understand how social VR might improve patients’ quality of life and encourage consistent treatment, Matura and her team came up with a simple design: two groups of 30 patients will be provided with VR headsets and a list of movies and shows available for streaming. The first group will be able to interact through their avatars while the movie plays, while each member of the second group will watch the movie independently.

A person in a VR headset is actively engaged in a virtual reality demonstration in a dimly lit room. Behind them, two observers seated at a table watch the experience unfold on a large screen, which displays a colorful, ornate virtual environment. The scene is set in an educational context, highlighting the use of VR technology.
Lea Ann Matura (Penn Nursing) and Kyle Cassidy (Annenberg Extended Realty Lab) monitor the experience of volunteer Edwin Garcia as he enters a virtual reality movie theater. Image courtesy of the Annenberg School for Communication.

Matura has a few hypotheses about the outcome: “We expect that people in the first group will learn more about each other as the study progresses. That one person really likes rom coms, for example, or old Westerns.” Though the 18-month trial period is expected to begin this summer, she already sees a future where people could connect across dialysis centers nationwide, meeting in virtual reality to watch movies in a certain language or particular genre. “Why couldn’t grandparents use this to watch movies with their grandkids at home? It makes you think,” contemplates Matura.

For those lonely in treatment, the trial offers the possibility of building new friendships or even strengthening old ones—the possibility of care that doesn’t just treat the disease but tends to the patient.

Read the Surgeon General’s Advisory on Loneliness and Isolation.